Perfect World Cover

A Perfect World (A Father's Quest to Unriddle the Mysteries of Autism) by David Cohen

RANDOM HOUSE

David Cohen's remarkable book is both a journey and a story of home. After his three year-old son Eliot is diagnosed with autism, he travels the world to meet leading autism researchers, educators and clinicians. But the heart of the book is his moving meditation on family and what really makes a good life.

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Stories

Stories matter. They help us all to know that others have walked the same path, and we should all have the right to say who we are. People on the autistic spectrum and their parents, siblings or teachers are warmly invited to for publication here. Read More.

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Thoughts

ASD in New Zealand – update

Russell Brown and Mike King had a lively sesssion on Asperger’s Syndrome on Radio Live last night. Russell namechecked humans several times so I thought it would be good to provide an update of ASD policy and initiatives. It was obvious from the callers that there are still significant regional differences, and finding support for ASD [...]

Posted in Uncategorized by Hilary Stace on June 14th 2010, 3 responses

Story: Sean

I will start with the happy ending. In the last month our son, Sean, age 16, has competed in a music contest receiving a superior rating on his solo piano performance. He also competed in a choir solo and group performance receiving two superiors. He arranged two pop songs for piano then played and sang [...]

Posted in Uncategorized by Russell Brown on March 23rd 2010, 1 response

Common sense is not common

The Herald on Sunday features an interview with Nigel Latta by Deborah Coddington, weirdly condensed into this brief about Oppositional Defiance Disorder.
In the full print story, Latta dishes out jumbo servings of his usual faux common-sense parenting advice, lurching into this bizarre statement:
“But I’ve been around the family area more than 20 years, long enough [...]

Posted in Asperger Syndrome, Autism, Bad practice, New Zealand, Parenting by Russell Brown on March 1st 2010, 11 responses

Marcus’ Story

 Our son Marcus was born after a long and arduous but seemingly straightforward delivery. Birth is traumatic at the best of times, but the following day was pretty traumatic too. Around midnight I received a call from my wife tearfully telling me that Marcus had been having seizures, and had been rushed into the Newborn [...]

Posted in Autism, New Zealand, Parenting, Stories, Uncategorized by Hilary Stace on February 4th 2010, 6 responses

Will national standards fail autistic students?

 
 The act requiring the new educational standards regime was passed through all its stages in Parliament in 24 hours just before Christmas 2008. It did not go to a select committee where the public, autism advocates, and those with lived experience, could make submissions. This was unfortunate as some of us could have pointed out the negative implications [...]

Posted in Advocacy, Asperger Syndrome, Autism, Bad practice, New Zealand, Policy, Schooling by Hilary Stace on November 27th 2009, 6 responses

Stories: Making Pizza with Lucia, by Giovanni Tiso

One Monday in mid-June of 1996 I took the train from Milan to Vicenza and found my way to the street address printed on the call-up card I had received just a few days earlier. A little surprised to discover that it was an ordinary looking residence, not the office or hospital building I expected, [...]

Posted in Asperger Syndrome, Autism, Parenting, Stories by Russell Brown on October 4th 2009, 9 responses

“My life when I leave school”: Transformative research for school transitions

Caroline Quick and Andrew Dever are two articulate young adults, who, like many other emerging researchers, are seeking research funding for their work. They have recently left Allenvale Special School in Christchurch and Caroline is currently attending a two year life skills course at CPIT and Andrew is at Skillwise.  They are now conducting their own participatory focus group [...]

Posted in Advocacy, New Zealand, Policy, Schooling, Stories, Uncategorized by Hilary Stace on September 7th 2009, 1 response

US Disability Community Honours Ted Kennedy’s Legacy

From Ari Ne’eman and the Autistic Self Advocacy Network (see contact details below)

Excerpts from “Lives Edward Kennedy changed” by Jennifer Maloney from August 26 issue of Newsday

“Sen. Edward M. Kennedy’s sweeping legislative record spans nearly five decades and includes monumental shifts in social policy that improved the lives of millions. A liberal lion who roared [...]

Posted in Advocacy, Policy, Stories, Uncategorized by Hilary Stace on September 2nd 2009, no responses

NZ Autism Spectrum Disorder Guideline Newsletter

This newsletter from the Ministry of Health outlines what has been happening regarding the NZ ASD Guideline Implementation, which has been mentioned on other occasions on Humans. Sometimes it might seem that there is not much progress on the ground, but there has been a great deal of activity behind the scenes, which will hopefully mean improved supports and services eventually. [...]

Posted in Asperger Syndrome, Autism, New Zealand, Policy by Hilary Stace on August 10th 2009, 2 responses

“Thinking Disability Studies in the Antipodes in the 21st Century”

The previous post mentioned Martin Sullivan’s keynote address to the Disability Studies Conference in Sydney. Although it only briefly mentions autism specifically, it is a rare academic assessment of disability issues locally, and the links between the Treaty of Waitangi and the NZ Disability Strategy.   
Keynote address to the Disability Studies Conference, Disability Studies Research Centre, University [...]

Posted in Advocacy, New Zealand, Policy by Hilary Stace on July 29th 2009, no responses