Perfect World Cover

A Perfect World (A Father's Quest to Unriddle the Mysteries of Autism) by David Cohen

RANDOM HOUSE

David Cohen's remarkable book is both a journey and a story of home. After his three year-old son Eliot is diagnosed with autism, he travels the world to meet leading autism researchers, educators and clinicians. But the heart of the book is his moving meditation on family and what really makes a good life.

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Stories

Stories matter. They help us all to know that others have walked the same path, and we should all have the right to say who we are. People on the autistic spectrum and their parents, siblings or teachers are warmly invited to for publication here. Read More.

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Update on the NZ ASD Guideline from the Ministry of Health December 2008

Here is the latest official news on the Austism Spectrum Disorder Guideline from the Ministry of Health. Some of the formatting and visual information has been lost in translation but you can see the original pdf at  New Zealand Autism Spectrum Disorder (ASD) Guideline Updates
http://www.moh.govt.nz/moh.nsf/pagesmh/8594/$File/asd-newsletter-dec08.pdf
Two new tenders have also just been released as part of the implementation process. […]

Posted in Policy, Autism, New Zealand by Hilary Stace on December 24th 2008, no responses

THE NZ ASD GUIDELINE: BRINGING LIVED EXPERIENCE INTO POLICY

[This is an abridged version of a paper I gave as part of a symposium on the NZ ASD Guideline at the Australasian ASSID conference in Melbourne on 26 November 2008. I would be interested in any feedback.] 
Introduction
The New Zealand Autism Spectrum Disorder Guideline is a whole of spectrum, whole of life, whole of government approach […]

Posted in Advocacy, Policy, Autism, New Zealand by Hilary Stace on December 10th 2008, 2 responses

Stories: Mary Browne

I am writing this story as a cautionary tale of what can happen.
I am a woman with Asperger’s Syndrome, aged 41 and living in Christchurch NZ. My whole life story would take too long to tell, and is all very sad. I am on the Invalid Benefit, having other health issues as well, […]

Posted in Stories, Asperger Syndrome by Russell Brown on December 3rd 2008, 5 responses

Officially avoiding the issue

The Herald on Sunday has a story about the death of Finn Higgins, noting that “an independent review of his situation shows that the mental health crisis team failed Higgins at every turn.”
Che Tibby is justifiably angry in response, and there are some useful comments under his blog post, including one from Finn’s mother, Diane […]

Posted in Bad practice, Parenting, Advocacy, Asperger Syndrome, New Zealand by Russell Brown on November 25th 2008, no responses

Update on the Implementation of the New Zealand ASD Guideline

People may be wondering what has been happening with the implementation of the NZ ASD Guideline since a consortium led by the New Zealand Guidelines Group working in partnership with the Ministries of Health and Education began working on it earlier this year. An Implementation Advisory Group (IAG) was set up, has now met three times, and has started prioritising the […]

Posted in Policy, Autism, New Zealand, Uncategorized by Hilary Stace on November 14th 2008, no responses

Finn’s Story

Finn Higgins was known to users of the Public Address System discussion forums as a keen-minded, literate, witty and sensitive debater, and an asset to the community. What we could not know was the extent to which he was struggling with depression and anxiety in his personal life. These problems were related to an undiagnosed […]

Posted in Bad practice, Stories, Advocacy, Asperger Syndrome, Uncategorized by Russell Brown on September 17th 2008, 6 responses

BUSY WEEK FOR DISABILITY - TWO STEPS FORWARD FOR INCLUSION

DISABILITY BILL PASSED
The first week of September was a busy week for Disability Issues. Tuesday night 2 September saw a significant step towards an inclusive New Zealand, with the passing of the Disability Bill that clears the way for New Zealand’s ratification of the United Nations Convention on the Rights of Persons with Disabilities. This work has been led by Minister for Disability Issues […]

Posted in Advocacy, Policy, New Zealand by Hilary Stace on September 8th 2008, 1 response

In Praise of Rail

When we were young my sisters and I spent many happy hours playing with a Hornby clockwork trainset which my father had collected in the 1920s. It had a gauge of about two inches, three shiny locomotives, and enough tracks and rolling stock to populate three bedrooms and a hallway. So I wasn’t surprised when my […]

Posted in Autism, New Zealand by Hilary Stace on July 31st 2008, 4 responses

NEW ZEALAND RECOGNISED FOR DISABILITY ISSUES PROGRESS

For those who don’t know me, I’m Matt Frost. I work as Policy and Information Researcher at CCS Disability Action National Office in Wellington. I am also proud to say I am an Aspie!
Last month, I was privileged to be able to attend ceremonies at the United Nations in New York. This is somewhere I […]

Posted in Stories, Advocacy, Policy, Asperger Syndrome by Hilary Stace on June 26th 2008, 4 responses

The New Zealand Autism Spectrum Disorder Guideline

The NZ Autism Spectrum Disorder Guideline was launched at Parliament on World Autism Awareness Day, 2 April 2008. It is a world first in that it is a whole of life, whole of spectrum and whole of government approach to autism. It will be a living guideline so can be updated regularly and have gaps […]