Stories
Stories matter. They help us all to know that others have walked the same path, and we should all have the right to say who we are. People on the autistic spectrum and their parents, siblings or teachers are warmly invited to for publication here. Read More.
Thoughts
ASD in New Zealand – update
Russell Brown and Mike King had a lively sesssion on Asperger’s Syndrome on Radio Live last night. Russell namechecked humans several times so I thought it would be good to provide an update of ASD policy and initiatives. It was obvious from the callers that there are still significant regional differences, and finding support for ASD [...]
Story: Sean
I will start with the happy ending. In the last month our son, Sean, age 16, has competed in a music contest receiving a superior rating on his solo piano performance. He also competed in a choir solo and group performance receiving two superiors. He arranged two pop songs for piano then played and sang [...]
Common sense is not common
The Herald on Sunday features an interview with Nigel Latta by Deborah Coddington, weirdly condensed into this brief about Oppositional Defiance Disorder.
In the full print story, Latta dishes out jumbo servings of his usual faux common-sense parenting advice, lurching into this bizarre statement:
“But I’ve been around the family area more than 20 years, long enough [...]
Marcus’ Story
Our son Marcus was born after a long and arduous but seemingly straightforward delivery. Birth is traumatic at the best of times, but the following day was pretty traumatic too. Around midnight I received a call from my wife tearfully telling me that Marcus had been having seizures, and had been rushed into the Newborn [...]
Will national standards fail autistic students?
The act requiring the new educational standards regime was passed through all its stages in Parliament in 24 hours just before Christmas 2008. It did not go to a select committee where the public, autism advocates, and those with lived experience, could make submissions. This was unfortunate as some of us could have pointed out the negative implications [...]
Stories: Making Pizza with Lucia, by Giovanni Tiso
One Monday in mid-June of 1996 I took the train from Milan to Vicenza and found my way to the street address printed on the call-up card I had received just a few days earlier. A little surprised to discover that it was an ordinary looking residence, not the office or hospital building I expected, [...]
“My life when I leave school”: Transformative research for school transitions
Caroline Quick and Andrew Dever are two articulate young adults, who, like many other emerging researchers, are seeking research funding for their work. They have recently left Allenvale Special School in Christchurch and Caroline is currently attending a two year life skills course at CPIT and Andrew is at Skillwise. They are now conducting their own participatory focus group [...]
US Disability Community Honours Ted Kennedy’s Legacy
From Ari Ne’eman and the Autistic Self Advocacy Network (see contact details below)
Excerpts from “Lives Edward Kennedy changed” by Jennifer Maloney from August 26 issue of Newsday
“Sen. Edward M. Kennedy’s sweeping legislative record spans nearly five decades and includes monumental shifts in social policy that improved the lives of millions. A liberal lion who roared [...]
NZ Autism Spectrum Disorder Guideline Newsletter
This newsletter from the Ministry of Health outlines what has been happening regarding the NZ ASD Guideline Implementation, which has been mentioned on other occasions on Humans. Sometimes it might seem that there is not much progress on the ground, but there has been a great deal of activity behind the scenes, which will hopefully mean improved supports and services eventually. [...]
“Thinking Disability Studies in the Antipodes in the 21st Centuryâ€
The previous post mentioned Martin Sullivan’s keynote address to the Disability Studies Conference in Sydney. Although it only briefly mentions autism specifically, it is a rare academic assessment of disability issues locally, and the links between the Treaty of Waitangi and the NZ Disability Strategy.  Â
Keynote address to the Disability Studies Conference, Disability Studies Research Centre, University [...]
