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A Perfect World (A Father's Quest to Unriddle the Mysteries of Autism) by David Cohen

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David Cohen's remarkable book is both a journey and a story of home. After his three year-old son Eliot is diagnosed with autism, he travels the world to meet leading autism researchers, educators and clinicians. But the heart of the book is his moving meditation on family and what really makes a good life.

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NEW ZEALAND RECOGNISED FOR DISABILITY ISSUES PROGRESS

For those who don’t know me, I’m Matt Frost. I work as Policy and Information Researcher at CCS Disability Action National Office in Wellington. I am also proud to say I am an Aspie!

Last month, I was privileged to be able to attend ceremonies at the United Nations in New York. This is somewhere I have always wanted to go as I’ve always been interested in international affairs. I accompanied my friend and colleague, Mike Gourley who is President of the New Zealand Disabled Persons Assembly, as Mike’s support person. This was great as we showed that two disabled people could be a strong support for each other- something commented on very favourably in New York.  

The Franklin Delano Roosevelt prize ceremony was incredibly special for me as a New Zealander. His Excellency the Governor- General, accompanied by Her Excellency and his party, accepted the award on behalf of New Zealand. This prize was awarded to New Zealand as the country which has made noteworthy progress towards the goals of the United Nations Convention on the Rights of Persons with Disabilities. Ban Ki-Moon, the UN Secretary- General was also present. It made me aware as someone with an impairment that we have made a lot of progress and are respected internationally, but that we as a country have a strong reputation to live up to and that we need our future actions to reflect this. It was also really special to attend the Entry into Force of the UN Convention- a policy document which will improve the lives of people with disabilities (including ASD) worldwide.  

New York was an amazing city which I can fully recommend. As someone with autism, I was a little nervous initially that the city would be large and unsafe. But I found it quite the opposite. People were generally very friendly and people that we met were delightful. One just got used to the noise- or indeed didn’t notice it if you were going through lovely places like Central Park or the

Pierpont

Museum. I was also lucky enough to spend my birthday in NYC- an amazing experience. I found the city to be one of ‘friendly bustle’ overall and not at all unsafe or overpowering. 
 

In summary, I was immensely proud to represent our country and disabled people in this way. New Zealanders I feel should realise what achievements the awarding of the prize and the Convention actually are. The prize recognises that we as a country (and the advocacy of disabled people in New Zealand) had a powerful role in obtaining world recognition of the concerns of disabled people worldwide. We should celebrate that- but also commit to continuing progress towards a society that fully includes all disabled people- including people with ASD- and their families/whanau. Matt Frost
Policy & Information Researcher
CCS Disability Action
DDI    04 801 0861
MOB  027 309 3706
EML   matt.frost@ccsdisabilityaction.org.nz
http://www.ccsdisabilityaction.org.nz/  

Posted in Advocacy, Asperger Syndrome, Policy, Stories by Hilary Stace on Thursday, June 26th, 2008 at 1:09 pm. Follow responses to this entry through the RSS 2.0 feed. Leave a response, or trackback from your own site.

10 responses to “NEW ZEALAND RECOGNISED FOR DISABILITY ISSUES PROGRESS”

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    Alyson Bradley (Aspergers Parallel Planet) wrote on July 2nd, 2008 at 3:07 pm:

    Thanks for that Matt, I was fortunate to meet Matt recently in Wellington and can not think of a better person to represent NZ, who is also committed to continueprogress towards a society that fully includes all disabled people- including people with ASD- and their families.

    Like Matt, I am also very happy and proud to be an aspie and part of the aspie/autie community. Alyson

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    John Rodgers wrote on July 2nd, 2008 at 6:59 pm:

    Great to read of your adventure matt and to see you making such a fantastic success of your life.

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    Shazia Shamim wrote on August 20th, 2008 at 7:09 am:

    Matt you are lucky who get chance to represent his country otherwise i always dream who i can’t join my army. By the way why why disabled people can’t fight for their country as army man?

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    Berinthia Binnie wrote on November 24th, 2008 at 5:58 pm:

    Hi Matt,

    A very belated thank you for your presentation at the Autism NZ Conference this year.

    Wonderful, intelligent, inspiring stuff.

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    Linda wrote on May 18th, 2011 at 11:20 pm:

    I really congratulate you on your achievements.Please keep them up.I hope we can develop more awareness towards autism in New Zealand

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    3d tv wrote on June 7th, 2011 at 7:25 pm:

    “Autism Now” is a six-part series. It’s described as “the most comprehensive look at the disorder and its impact that’s aired on American television in at least five years.

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    Ayurvedic Dietary Supplements from India wrote on June 13th, 2011 at 2:49 am:

    I love how you have been able to garner those achievement of yours. Every person especially the parents should be aware of autism because it is imperative to know about them.

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    Dose wrote on June 16th, 2011 at 1:41 am:

    Nice post. You’re an inspiration. What you’ve achieved now is due to your effort. Keep up the good work..

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    Brain wrote on July 29th, 2011 at 5:52 pm:

    This was so close to home .In many ways.My 3yr old son David is so much like this .I been trying for help with him for about a year,i had early intervention,thay now say hes bottum line of the speckstrum.I has to get him to a gastroenterology,ect dr.my son only eats baby food bannans only,holds his stool only tiny bit comes out,thay say that the way this acts.ect I am so WORRIED,I BEG for help for him,i have been! I wish i had some one like u with me.i love this ,so glad u shared it. if u could please my e-mail is lilman luciano5@gmail.com please write me ,give me more info to contact for my son .I would be so thank full.PLEASE .Thank u ,GOD_BLESS U ALL worried mommy for her 1,only child Davie,i hope everything gets better for all of u too bless u !!

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    Jeremy Justice wrote on April 17th, 2012 at 4:32 am:

    Sounds like you learned a lot on your journey. Keep up the good work and good luck!

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