Perfect World Cover

A Perfect World (A Father's Quest to Unriddle the Mysteries of Autism) by David Cohen

RANDOM HOUSE

David Cohen's remarkable book is both a journey and a story of home. After his three year-old son Eliot is diagnosed with autism, he travels the world to meet leading autism researchers, educators and clinicians. But the heart of the book is his moving meditation on family and what really makes a good life.

Buy now from the Public Address Store

Search

You are currently browsing the archives for the Advocacy tag.

Archives

‘Advocacy’ Archive

Will national standards fail autistic students?

 
 The act requiring the new educational standards regime was passed through all its stages in Parliament in 24 hours just before Christmas 2008. It did not go to a select committee where the public, autism advocates, and those with lived experience, could make submissions. This was unfortunate as some of us could have pointed out the negative implications [...]

Posted in Advocacy, Asperger Syndrome, Autism, Bad practice, New Zealand, Policy, Schooling by Hilary Stace on November 27th 2009, 6 responses

“My life when I leave school”: Transformative research for school transitions

Caroline Quick and Andrew Dever are two articulate young adults, who, like many other emerging researchers, are seeking research funding for their work. They have recently left Allenvale Special School in Christchurch and Caroline is currently attending a two year life skills course at CPIT and Andrew is at Skillwise.  They are now conducting their own participatory focus group [...]

Posted in Advocacy, New Zealand, Policy, Schooling, Stories, Uncategorized by Hilary Stace on September 7th 2009, 1 response

US Disability Community Honours Ted Kennedy’s Legacy

From Ari Ne’eman and the Autistic Self Advocacy Network (see contact details below)

Excerpts from “Lives Edward Kennedy changed” by Jennifer Maloney from August 26 issue of Newsday

“Sen. Edward M. Kennedy’s sweeping legislative record spans nearly five decades and includes monumental shifts in social policy that improved the lives of millions. A liberal lion who roared [...]

Posted in Advocacy, Policy, Stories, Uncategorized by Hilary Stace on September 2nd 2009, no responses

“Thinking Disability Studies in the Antipodes in the 21st Century”

The previous post mentioned Martin Sullivan’s keynote address to the Disability Studies Conference in Sydney. Although it only briefly mentions autism specifically, it is a rare academic assessment of disability issues locally, and the links between the Treaty of Waitangi and the NZ Disability Strategy.   
Keynote address to the Disability Studies Conference, Disability Studies Research Centre, University [...]

Posted in Advocacy, New Zealand, Policy by Hilary Stace on July 29th 2009, no responses

World Autism Day 2 April

Thursday 2 April was World Autism Day 
President Obama didn’t forget World Autism Awareness Day and his office sent out this message
 Hello,
Kareem Dale, Special Assistant to the President for Disability Policy,
advised me to send you the following attachments.
Thank you for all that you do,
Matt Tranchin
The White House
Office of Public Liaison

March 30, 2009

It is with profound commitment [...]

Posted in Advocacy, Asperger Syndrome, Autism, New Zealand, Uncategorized by Hilary Stace on April 6th 2009, 3 responses

A Tribute to Mrs. Suzman

Firstly, happy New Year to everyone involved with this great website. New Year’s Resolution- fit a little time in the busy nature of life in disability advocacy to post here.
Hope everyone’s holidays have been good? I have really enjoyed taking time out and recharging the batteries with my family here in Blenheim. But in truth, [...]

Posted in Advocacy by mattf on January 11th 2009, no responses

Recommendations to the Obama Transition Team

Ari Ne’eman, who runs the Autistic Self Advocacy Network in the US, has sent out their recommendations about autism to the Obama Transition Team. President-elect Obama has already promised to ratify the UN Convention on the Rights of Persons with Disabilities and even had autism-specific policies in his election manifesto. These recommendations have been made at the request of the Transition Team, [...]

Posted in Advocacy, Asperger Syndrome, Autism, Policy, Schooling by Hilary Stace on January 8th 2009, 4 responses

THE NZ ASD GUIDELINE: BRINGING LIVED EXPERIENCE INTO POLICY

[This is an abridged version of a paper I gave as part of a symposium on the NZ ASD Guideline at the Australasian ASSID conference in Melbourne on 26 November 2008. I would be interested in any feedback.] 
Introduction
The New Zealand Autism Spectrum Disorder Guideline is a whole of spectrum, whole of life, whole of government approach [...]

Posted in Advocacy, Autism, New Zealand, Policy by Hilary Stace on December 10th 2008, 4 responses

Officially avoiding the issue

The Herald on Sunday has a story about the death of Finn Higgins, noting that “an independent review of his situation shows that the mental health crisis team failed Higgins at every turn.”
Che Tibby is justifiably angry in response, and there are some useful comments under his blog post, including one from Finn’s mother, Diane [...]

Posted in Advocacy, Asperger Syndrome, Bad practice, New Zealand, Parenting by Russell Brown on November 25th 2008, 1 response

Finn’s Story

Finn Higgins was known to users of the Public Address System discussion forums as a keen-minded, literate, witty and sensitive debater, and an asset to the community. What we could not know was the extent to which he was struggling with depression and anxiety in his personal life. These problems were related to an undiagnosed [...]

Posted in Advocacy, Asperger Syndrome, Bad practice, Stories, Uncategorized by Russell Brown on September 17th 2008, 6 responses