Perfect World Cover

A Perfect World (A Father's Quest to Unriddle the Mysteries of Autism) by David Cohen

RANDOM HOUSE

David Cohen's remarkable book is both a journey and a story of home. After his three year-old son Eliot is diagnosed with autism, he travels the world to meet leading autism researchers, educators and clinicians. But the heart of the book is his moving meditation on family and what really makes a good life.

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‘Advocacy’ Archive

Finn’s Story

Finn Higgins was known to users of the Public Address System discussion forums as a keen-minded, literate, witty and sensitive debater, and an asset to the community. What we could not know was the extent to which he was struggling with depression and anxiety in his personal life. These problems were related to an undiagnosed [...]

Posted in Advocacy, Asperger Syndrome, Bad practice, Stories, Uncategorized by Russell Brown on September 17th 2008, 10 responses

BUSY WEEK FOR DISABILITY – TWO STEPS FORWARD FOR INCLUSION

DISABILITY BILL PASSED
The first week of September was a busy week for Disability Issues. Tuesday night 2 September saw a significant step towards an inclusive New Zealand, with the passing of the Disability Bill that clears the way for New Zealand’s ratification of the United Nations Convention on the Rights of Persons with Disabilities. This work has been led by Minister for Disability Issues [...]

Posted in Advocacy, New Zealand, Policy by Hilary Stace on September 8th 2008, 2 responses

NEW ZEALAND RECOGNISED FOR DISABILITY ISSUES PROGRESS

For those who don’t know me, I’m Matt Frost. I work as Policy and Information Researcher at CCS Disability Action National Office in Wellington. I am also proud to say I am an Aspie!
Last month, I was privileged to be able to attend ceremonies at the United Nations in New York. This is somewhere I [...]

Posted in Advocacy, Asperger Syndrome, Policy, Stories by Hilary Stace on June 26th 2008, 9 responses

The New Zealand Autism Spectrum Disorder Guideline

The NZ Autism Spectrum Disorder Guideline was launched at Parliament on World Autism Awareness Day, 2 April 2008. It is a world first in that it is a whole of life, whole of spectrum and whole of government approach to autism. It will be a living guideline so can be updated regularly and have gaps [...]

Stories: Alyson Bradley

The diversity of Autism Spectrum Disorder: Who does it affect?  Tt has no class or race barriers, it’s invisible and among us all. Except I am still often kept hidden. I am intellectually disadvantaged, have learning disorders and yes I am on the autism spectrum, you could say I have an invisible disability.At times in [...]

Posted in Advocacy, Asperger Syndrome, Parenting by Russell Brown on March 24th 2008, 3 responses

Autism Support and Child Cancer Services: Some Similarities

Saving child cancer services at Wellington Hospital has been a major public health issue lately. However, this situation need not have arisen if some forward planning had been done in the 1990s. It takes about 15 years to train a paediatric oncologist and there is a global shortage of these and other skilled health professionals. [...]

Posted in Advocacy, Autism, New Zealand by Hilary Stace on January 4th 2008, 6 responses

Was Janet Frame on the Autistic Spectrum?

Autism has featured in the mainstream news lately with a flurry of activity after the NZ Medical Journal of 12 October published an article by a New Zealand doctor working in Australia, proposing that Janet Frame had high-functioning autism (HFA). Rehabilitation physician Sarah Abrahamson of the Queen Elizabeth Centre in Ballarat analysed Janet Frame’s autobiographical [...]

Posted in Advocacy, Asperger Syndrome, Autism, Books, New Zealand, Stories by Hilary Stace on November 8th 2007, 19 responses

Good politics

Autism support as an election issue? Really? Oddly enough, that appears to be what’s happening in Australia.
 
On the same day that Labor leader Kevin Rudd used his campaign site (yes, there’s no election date, but you can bet there’s a campaign) to announce plans to introduce specialised child care and early intervention services for [...]

Posted in Advocacy, Asperger Syndrome, Autism, Policy by Russell Brown on October 9th 2007, 4 responses

The Inclusive Education Action Group

“The Government’s objective, broadly expressed, is that every person, whatever his level of academic ability, whether he be rich or poor, whether he live in town or country, has a right, as a citizen, to a free education of the kind for which he is best fitted and to the fullest extent of his powers. [...]

Posted in Advocacy, Asperger Syndrome, Autism, New Zealand, Policy by Hilary Stace on September 24th 2007, 16 responses

Shocking

When a news organisation reports on a “new” treatment for autism, you should hear the alarm bells go off in your head — and that’s certainly the case with the Australian Nine Network’s report this week on the work of Matthew Israel, who runs the Judge Rotenberg Centre in Massachusetts.
Israel is a behaviourist who fits [...]

Posted in ABA, Advocacy, Bad practice, Video and audio by Russell Brown on August 23rd 2007, 4 responses