Perfect World Cover

A Perfect World (A Father's Quest to Unriddle the Mysteries of Autism) by David Cohen

RANDOM HOUSE

David Cohen's remarkable book is both a journey and a story of home. After his three year-old son Eliot is diagnosed with autism, he travels the world to meet leading autism researchers, educators and clinicians. But the heart of the book is his moving meditation on family and what really makes a good life.

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‘Asperger Syndrome’ Archive

Common sense is not common

The Herald on Sunday features an interview with Nigel Latta by Deborah Coddington, weirdly condensed into this brief about Oppositional Defiance Disorder.
In the full print story, Latta dishes out jumbo servings of his usual faux common-sense parenting advice, lurching into this bizarre statement:
“But I’ve been around the family area more than 20 years, long enough [...]

Posted in Asperger Syndrome, Autism, Bad practice, New Zealand, Parenting by Russell Brown on March 1st 2010, 6 responses

Will national standards fail autistic students?

 
 The act requiring the new educational standards regime was passed through all its stages in Parliament in 24 hours just before Christmas 2008. It did not go to a select committee where the public, autism advocates, and those with lived experience, could make submissions. This was unfortunate as some of us could have pointed out the negative implications [...]

Posted in Advocacy, Asperger Syndrome, Autism, Bad practice, New Zealand, Policy, Schooling by Hilary Stace on November 27th 2009, 6 responses

Stories: Making Pizza with Lucia, by Giovanni Tiso

One Monday in mid-June of 1996 I took the train from Milan to Vicenza and found my way to the street address printed on the call-up card I had received just a few days earlier. A little surprised to discover that it was an ordinary looking residence, not the office or hospital building I expected, [...]

Posted in Asperger Syndrome, Autism, Parenting, Stories by Russell Brown on October 4th 2009, 9 responses

NZ Autism Spectrum Disorder Guideline Newsletter

This newsletter from the Ministry of Health outlines what has been happening regarding the NZ ASD Guideline Implementation, which has been mentioned on other occasions on Humans. Sometimes it might seem that there is not much progress on the ground, but there has been a great deal of activity behind the scenes, which will hopefully mean improved supports and services eventually. [...]

Posted in Asperger Syndrome, Autism, New Zealand, Policy by Hilary Stace on August 10th 2009, 2 responses

Thorkil Sonne and his employment model for people with autism

  
Danish Thorkil Sonne has built up a successful company, Specialisterne, which employs people with autism in IT and product testing. He is coming to Sydney for the APAC09 conference in August but, unfortunately, contractual obligations prevent him from coming to New Zealand at this time. This article was published in the Independent.
http://www.independent.co.uk/life-style/gadgets-and-tech/features/better-faster-and-no-office-politics-the-company-with-the-autistic-specialists-1693057.html
Better, faster…and no office politics: the company with the [...]

Posted in Asperger Syndrome, Autism, Uncategorized by Hilary Stace on June 19th 2009, 5 responses

Out in the world and coping with an ‘invisible disability’

The following article was written by Reesh Lyon, a journalism student at Wellington’s Whitireia Polytechnic, about Alan George a member of his quiz team. It is reproduced here with the permission of Alan, Reesh and the journalism course. The full article is at http://www.newswire.co.nz/2009/03/invisible-disability/

Mar 30th, 2009 | By Reesh Lyon | Category: Featured Article, Front Page [...]

Posted in Articles, Asperger Syndrome, New Zealand, Stories by Hilary Stace on April 27th 2009, 4 responses

World Autism Day 2 April

Thursday 2 April was World Autism Day 
President Obama didn’t forget World Autism Awareness Day and his office sent out this message
 Hello,
Kareem Dale, Special Assistant to the President for Disability Policy,
advised me to send you the following attachments.
Thank you for all that you do,
Matt Tranchin
The White House
Office of Public Liaison

March 30, 2009

It is with profound commitment [...]

Posted in Advocacy, Asperger Syndrome, Autism, New Zealand, Uncategorized by Hilary Stace on April 6th 2009, 3 responses

Education National Standards Amendment Act 2008 and implications for students with autism and their families

I was angered that a significant change to the Education Act was passed by Parliament through all its stages under urgency before Christmas. It increased fines for parents of students who were not attending school, and it made way for publicly notified standardised testing of primary school students (as in the No Child Left Behind policy of the United States). [...]

Does everyone with AS want or need a diagnosis?

Sarah is a New Zealand trained clinician working in Australia. As someone skilled in recognising autism spectrum conditions, she often faces a  dilemma about disclosure of possible AS to her patients. She wrote this for humans. She also has a website www.aspiesontv.blogspot.com
As a clinician working with a range of general patients, but with a research and clinical interest in [...]

Posted in Asperger Syndrome, Autism, Uncategorized by Hilary Stace on January 23rd 2009, 5 responses

Recommendations to the Obama Transition Team

Ari Ne’eman, who runs the Autistic Self Advocacy Network in the US, has sent out their recommendations about autism to the Obama Transition Team. President-elect Obama has already promised to ratify the UN Convention on the Rights of Persons with Disabilities and even had autism-specific policies in his election manifesto. These recommendations have been made at the request of the Transition Team, [...]

Posted in Advocacy, Asperger Syndrome, Autism, Policy, Schooling by Hilary Stace on January 8th 2009, 4 responses