Perfect World Cover

A Perfect World (A Father's Quest to Unriddle the Mysteries of Autism) by David Cohen

RANDOM HOUSE

David Cohen's remarkable book is both a journey and a story of home. After his three year-old son Eliot is diagnosed with autism, he travels the world to meet leading autism researchers, educators and clinicians. But the heart of the book is his moving meditation on family and what really makes a good life.

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‘Autism’ Archive

Update on the NZ ASD Guideline from the Ministry of Health December 2008

Here is the latest official news on the Austism Spectrum Disorder Guideline from the Ministry of Health. Some of the formatting and visual information has been lost in translation but you can see the original pdf at  New Zealand Autism Spectrum Disorder (ASD) Guideline Updates
http://www.moh.govt.nz/moh.nsf/pagesmh/8594/$File/asd-newsletter-dec08.pdf
Two new tenders have also just been released as part of the implementation process. [...]

Posted in Autism, New Zealand, Policy by Hilary Stace on December 24th 2008, no responses

THE NZ ASD GUIDELINE: BRINGING LIVED EXPERIENCE INTO POLICY

[This is an abridged version of a paper I gave as part of a symposium on the NZ ASD Guideline at the Australasian ASSID conference in Melbourne on 26 November 2008. I would be interested in any feedback.] 
Introduction
The New Zealand Autism Spectrum Disorder Guideline is a whole of spectrum, whole of life, whole of government approach [...]

Posted in Advocacy, Autism, New Zealand, Policy by Hilary Stace on December 10th 2008, 4 responses

Update on the Implementation of the New Zealand ASD Guideline

People may be wondering what has been happening with the implementation of the NZ ASD Guideline since a consortium led by the New Zealand Guidelines Group working in partnership with the Ministries of Health and Education began working on it earlier this year. An Implementation Advisory Group (IAG) was set up, has now met three times, and has started prioritising the [...]

Posted in Autism, New Zealand, Policy, Uncategorized by Hilary Stace on November 14th 2008, no responses

In Praise of Rail

When we were young my sisters and I spent many happy hours playing with a Hornby clockwork trainset which my father had collected in the 1920s. It had a gauge of about two inches, three shiny locomotives, and enough tracks and rolling stock to populate three bedrooms and a hallway. So I wasn’t surprised when my [...]

Posted in Autism, New Zealand by Hilary Stace on July 31st 2008, 3 responses

The New Zealand Autism Spectrum Disorder Guideline

The NZ Autism Spectrum Disorder Guideline was launched at Parliament on World Autism Awareness Day, 2 April 2008. It is a world first in that it is a whole of life, whole of spectrum and whole of government approach to autism. It will be a living guideline so can be updated regularly and have gaps [...]

There Are Exceptions

Last Friday was a great day. An hour before we set off for the Big Day Out, the mail arrived. It contained our older boy’s first set of NCEA results. He achieved every Level 1 standard he sat, and picked up a couple of merits along the way.
For an Asperger Syndrome child we once thought [...]

Posted in Asperger Syndrome, Autism, New Zealand, Parenting, Schooling by Russell Brown on January 23rd 2008, 28 responses

Autism Support and Child Cancer Services: Some Similarities

Saving child cancer services at Wellington Hospital has been a major public health issue lately. However, this situation need not have arisen if some forward planning had been done in the 1990s. It takes about 15 years to train a paediatric oncologist and there is a global shortage of these and other skilled health professionals. [...]

Posted in Advocacy, Autism, New Zealand by Hilary Stace on January 4th 2008, 2 responses

Online Autism Conference

The third annual AWARES international online autism conference begins November 26th and is open to all to visit and participate. Here’s your chance to read the opinion and research findings from a long line of authorities, some very well known names, weighing in on all sides of the subject, including theories about causation, development, intervention, [...]

Posted in Articles, Asperger Syndrome, Autism by Lesley Maclean on November 19th 2007, 3 responses

Was Janet Frame on the Autistic Spectrum?

Autism has featured in the mainstream news lately with a flurry of activity after the NZ Medical Journal of 12 October published an article by a New Zealand doctor working in Australia, proposing that Janet Frame had high-functioning autism (HFA). Rehabilitation physician Sarah Abrahamson of the Queen Elizabeth Centre in Ballarat analysed Janet Frame’s autobiographical [...]

Posted in Advocacy, Asperger Syndrome, Autism, Books, New Zealand, Stories by Hilary Stace on November 8th 2007, 17 responses

Good politics

Autism support as an election issue? Really? Oddly enough, that appears to be what’s happening in Australia.
 
On the same day that Labor leader Kevin Rudd used his campaign site (yes, there’s no election date, but you can bet there’s a campaign) to announce plans to introduce specialised child care and early intervention services for [...]

Posted in Advocacy, Asperger Syndrome, Autism, Policy by Russell Brown on October 9th 2007, 4 responses