Perfect World Cover

A Perfect World (A Father's Quest to Unriddle the Mysteries of Autism) by David Cohen

RANDOM HOUSE

David Cohen's remarkable book is both a journey and a story of home. After his three year-old son Eliot is diagnosed with autism, he travels the world to meet leading autism researchers, educators and clinicians. But the heart of the book is his moving meditation on family and what really makes a good life.

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‘Policy’ Archive

Recommendations to the Obama Transition Team

Ari Ne’eman, who runs the Autistic Self Advocacy Network in the US, has sent out their recommendations about autism to the Obama Transition Team. President-elect Obama has already promised to ratify the UN Convention on the Rights of Persons with Disabilities and even had autism-specific policies in his election manifesto. These recommendations have been made at the request of the Transition Team, [...]

Posted in Advocacy, Asperger Syndrome, Autism, Policy, Schooling by Hilary Stace on January 8th 2009, 4 responses

Update on the NZ ASD Guideline from the Ministry of Health December 2008

Here is the latest official news on the Austism Spectrum Disorder Guideline from the Ministry of Health. Some of the formatting and visual information has been lost in translation but you can see the original pdf at  New Zealand Autism Spectrum Disorder (ASD) Guideline Updates
http://www.moh.govt.nz/moh.nsf/pagesmh/8594/$File/asd-newsletter-dec08.pdf
Two new tenders have also just been released as part of the implementation process. [...]

Posted in Autism, New Zealand, Policy by Hilary Stace on December 24th 2008, no responses

THE NZ ASD GUIDELINE: BRINGING LIVED EXPERIENCE INTO POLICY

[This is an abridged version of a paper I gave as part of a symposium on the NZ ASD Guideline at the Australasian ASSID conference in Melbourne on 26 November 2008. I would be interested in any feedback.] 
Introduction
The New Zealand Autism Spectrum Disorder Guideline is a whole of spectrum, whole of life, whole of government approach [...]

Posted in Advocacy, Autism, New Zealand, Policy by Hilary Stace on December 10th 2008, 4 responses

Update on the Implementation of the New Zealand ASD Guideline

People may be wondering what has been happening with the implementation of the NZ ASD Guideline since a consortium led by the New Zealand Guidelines Group working in partnership with the Ministries of Health and Education began working on it earlier this year. An Implementation Advisory Group (IAG) was set up, has now met three times, and has started prioritising the [...]

Posted in Autism, New Zealand, Policy, Uncategorized by Hilary Stace on November 14th 2008, no responses

BUSY WEEK FOR DISABILITY – TWO STEPS FORWARD FOR INCLUSION

DISABILITY BILL PASSED
The first week of September was a busy week for Disability Issues. Tuesday night 2 September saw a significant step towards an inclusive New Zealand, with the passing of the Disability Bill that clears the way for New Zealand’s ratification of the United Nations Convention on the Rights of Persons with Disabilities. This work has been led by Minister for Disability Issues [...]

Posted in Advocacy, New Zealand, Policy by Hilary Stace on September 8th 2008, 2 responses

NEW ZEALAND RECOGNISED FOR DISABILITY ISSUES PROGRESS

For those who don’t know me, I’m Matt Frost. I work as Policy and Information Researcher at CCS Disability Action National Office in Wellington. I am also proud to say I am an Aspie!
Last month, I was privileged to be able to attend ceremonies at the United Nations in New York. This is somewhere I [...]

Posted in Advocacy, Asperger Syndrome, Policy, Stories by Hilary Stace on June 26th 2008, 10 responses

The New Zealand Autism Spectrum Disorder Guideline

The NZ Autism Spectrum Disorder Guideline was launched at Parliament on World Autism Awareness Day, 2 April 2008. It is a world first in that it is a whole of life, whole of spectrum and whole of government approach to autism. It will be a living guideline so can be updated regularly and have gaps [...]

Good politics

Autism support as an election issue? Really? Oddly enough, that appears to be what’s happening in Australia.
 
On the same day that Labor leader Kevin Rudd used his campaign site (yes, there’s no election date, but you can bet there’s a campaign) to announce plans to introduce specialised child care and early intervention services for [...]

Posted in Advocacy, Asperger Syndrome, Autism, Policy by Russell Brown on October 9th 2007, 4 responses

The Inclusive Education Action Group

“The Government’s objective, broadly expressed, is that every person, whatever his level of academic ability, whether he be rich or poor, whether he live in town or country, has a right, as a citizen, to a free education of the kind for which he is best fitted and to the fullest extent of his powers. [...]

Posted in Advocacy, Asperger Syndrome, Autism, New Zealand, Policy by Hilary Stace on September 24th 2007, 16 responses

The Evidence-Based Guideline for Autism Spectrum Disorder

The development of the Evidence-Based Guideline for Autism Spectrum Disorder is a significant cross-government project. The Guideline will be for anyone supporting or working with a people with autism, such as professionals or family members, who will be guided by what is known as ‘best practice’ according to internationally peer reviewed research. For those with [...]

Posted in Autism, New Zealand, Policy by Hilary Stace on August 8th 2007, 3 responses