Perfect World Cover

A Perfect World (A Father's Quest to Unriddle the Mysteries of Autism) by David Cohen

RANDOM HOUSE

David Cohen's remarkable book is both a journey and a story of home. After his three year-old son Eliot is diagnosed with autism, he travels the world to meet leading autism researchers, educators and clinicians. But the heart of the book is his moving meditation on family and what really makes a good life.

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‘Stories’ Archive

Marcus’ Story

 Our son Marcus was born after a long and arduous but seemingly straightforward delivery. Birth is traumatic at the best of times, but the following day was pretty traumatic too. Around midnight I received a call from my wife tearfully telling me that Marcus had been having seizures, and had been rushed into the Newborn [...]

Posted in Autism, New Zealand, Parenting, Stories, Uncategorized by Hilary Stace on February 4th 2010, 6 responses

Stories: Making Pizza with Lucia, by Giovanni Tiso

One Monday in mid-June of 1996 I took the train from Milan to Vicenza and found my way to the street address printed on the call-up card I had received just a few days earlier. A little surprised to discover that it was an ordinary looking residence, not the office or hospital building I expected, [...]

Posted in Asperger Syndrome, Autism, Parenting, Stories by Russell Brown on October 4th 2009, 9 responses

“My life when I leave school”: Transformative research for school transitions

Caroline Quick and Andrew Dever are two articulate young adults, who, like many other emerging researchers, are seeking research funding for their work. They have recently left Allenvale Special School in Christchurch and Caroline is currently attending a two year life skills course at CPIT and Andrew is at Skillwise.  They are now conducting their own participatory focus group [...]

Posted in Advocacy, New Zealand, Policy, Schooling, Stories, Uncategorized by Hilary Stace on September 7th 2009, 1 response

US Disability Community Honours Ted Kennedy’s Legacy

From Ari Ne’eman and the Autistic Self Advocacy Network (see contact details below)

Excerpts from “Lives Edward Kennedy changed” by Jennifer Maloney from August 26 issue of Newsday

“Sen. Edward M. Kennedy’s sweeping legislative record spans nearly five decades and includes monumental shifts in social policy that improved the lives of millions. A liberal lion who roared [...]

Posted in Advocacy, Policy, Stories, Uncategorized by Hilary Stace on September 2nd 2009, no responses

Out in the world and coping with an ‘invisible disability’

The following article was written by Reesh Lyon, a journalism student at Wellington’s Whitireia Polytechnic, about Alan George a member of his quiz team. It is reproduced here with the permission of Alan, Reesh and the journalism course. The full article is at http://www.newswire.co.nz/2009/03/invisible-disability/

Mar 30th, 2009 | By Reesh Lyon | Category: Featured Article, Front Page [...]

Posted in Articles, Asperger Syndrome, New Zealand, Stories by Hilary Stace on April 27th 2009, 4 responses

Stories: Mary Browne

I am writing this story as a cautionary tale of what can happen.
I am a woman with Asperger’s Syndrome, aged 41 and living in Christchurch NZ. My whole life story would take too long to tell, and is all very sad. I am on the Invalid Benefit, having other health issues as well, [...]

Posted in Asperger Syndrome, Stories by Russell Brown on December 3rd 2008, 7 responses

Finn’s Story

Finn Higgins was known to users of the Public Address System discussion forums as a keen-minded, literate, witty and sensitive debater, and an asset to the community. What we could not know was the extent to which he was struggling with depression and anxiety in his personal life. These problems were related to an undiagnosed [...]

Posted in Advocacy, Asperger Syndrome, Bad practice, Stories, Uncategorized by Russell Brown on September 17th 2008, 6 responses

NEW ZEALAND RECOGNISED FOR DISABILITY ISSUES PROGRESS

For those who don’t know me, I’m Matt Frost. I work as Policy and Information Researcher at CCS Disability Action National Office in Wellington. I am also proud to say I am an Aspie!
Last month, I was privileged to be able to attend ceremonies at the United Nations in New York. This is somewhere I [...]

Posted in Advocacy, Asperger Syndrome, Policy, Stories by Hilary Stace on June 26th 2008, 4 responses

The New Zealand Autism Spectrum Disorder Guideline

The NZ Autism Spectrum Disorder Guideline was launched at Parliament on World Autism Awareness Day, 2 April 2008. It is a world first in that it is a whole of life, whole of spectrum and whole of government approach to autism. It will be a living guideline so can be updated regularly and have gaps [...]

Was Janet Frame on the Autistic Spectrum?

Autism has featured in the mainstream news lately with a flurry of activity after the NZ Medical Journal of 12 October published an article by a New Zealand doctor working in Australia, proposing that Janet Frame had high-functioning autism (HFA). Rehabilitation physician Sarah Abrahamson of the Queen Elizabeth Centre in Ballarat analysed Janet Frame’s autobiographical [...]

Posted in Advocacy, Asperger Syndrome, Autism, Books, New Zealand, Stories by Hilary Stace on November 8th 2007, 17 responses