‘Uncategorized’ Archive
ASD in New Zealand – update
Russell Brown and Mike King had a lively sesssion on Asperger’s Syndrome on Radio Live last night. Russell namechecked humans several times so I thought it would be good to provide an update of ASD policy and initiatives. It was obvious from the callers that there are still significant regional differences, and finding support for ASD [...]
Story: Sean
I will start with the happy ending. In the last month our son, Sean, age 16, has competed in a music contest receiving a superior rating on his solo piano performance. He also competed in a choir solo and group performance receiving two superiors. He arranged two pop songs for piano then played and sang [...]
Marcus’ Story
Our son Marcus was born after a long and arduous but seemingly straightforward delivery. Birth is traumatic at the best of times, but the following day was pretty traumatic too. Around midnight I received a call from my wife tearfully telling me that Marcus had been having seizures, and had been rushed into the Newborn [...]
“My life when I leave school”: Transformative research for school transitions
Caroline Quick and Andrew Dever are two articulate young adults, who, like many other emerging researchers, are seeking research funding for their work. They have recently left Allenvale Special School in Christchurch and Caroline is currently attending a two year life skills course at CPIT and Andrew is at Skillwise. They are now conducting their own participatory focus group [...]
US Disability Community Honours Ted Kennedy’s Legacy
From Ari Ne’eman and the Autistic Self Advocacy Network (see contact details below)
Excerpts from “Lives Edward Kennedy changed” by Jennifer Maloney from August 26 issue of Newsday
“Sen. Edward M. Kennedy’s sweeping legislative record spans nearly five decades and includes monumental shifts in social policy that improved the lives of millions. A liberal lion who roared [...]
Disability Studies Conference, University of New South Wales, Sydney, Australia 26-27 June
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I attended a very interesting conference last month in Sydney, which, although initiated by Australians, was aimed at developing collaboration among those involved in disability studies in the so-called ‘Global South’. That includes the countries in the Asia/Pacific including Australia and Aotearoa/New Zealand. Its purpose was to set a disability research agenda for our region [...]
Thorkil Sonne and his employment model for people with autism
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Danish Thorkil Sonne has built up a successful company, Specialisterne, which employs people with autism in IT and product testing. He is coming to Sydney for the APAC09 conference in August but, unfortunately, contractual obligations prevent him from coming to New Zealand at this time. This article was published in the Independent.
http://www.independent.co.uk/life-style/gadgets-and-tech/features/better-faster-and-no-office-politics-the-company-with-the-autistic-specialists-1693057.html
Better, faster…and no office politics: the company with the [...]
World Autism Day 2 April
Thursday 2 April was World Autism DayÂ
President Obama didn’t forget World Autism Awareness Day and his office sent out this message
 Hello,
Kareem Dale, Special Assistant to the President for Disability Policy,
advised me to send you the following attachments.
Thank you for all that you do,
Matt Tranchin
The White House
Office of Public Liaison
March 30, 2009
It is with profound commitment [...]
Newsy bits and pieces
Consumer ForumsÂ
The Ministry of Health’s Disability Services is holding a series of forums around the country in March / April seeking feedback from people using DS funded services. Please go along if you can or make a postal, on-line or phone submission We need to complain loudly about Needs Assessment Service Coordination not accepting referrals [...]
Education National Standards Amendment Act 2008 and implications for students with autism and their families
I was angered that a significant change to the Education Act was passed by Parliament through all its stages under urgency before Christmas. It increased fines for parents of students who were not attending school, and it made way for publicly notified standardised testing of primary school students (as in the No Child Left Behind policy of the United States). [...]
