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 Our son Marcus was born after a long and arduous but seemingly straightforward delivery. Birth is traumatic at the best of times, but the following day was pretty traumatic too. Around midnight I received a call from my wife tearfully telling me that Marcus had been having seizures, and had been rushed into the Newborn [...]

Caroline Quick and Andrew Dever are two articulate young adults, who, like many other emerging researchers, are seeking research funding for their work. They have recently left Allenvale Special School in Christchurch and Caroline is currently attending a two year life skills course at CPIT and Andrew is at Skillwise.  They are now conducting their own participatory focus group [...]

From Ari Ne’eman and the Autistic Self Advocacy Network (see contact details below)

Excerpts from “Lives Edward Kennedy changed” by Jennifer Maloney from August 26 issue of Newsday

“Sen. Edward M. Kennedy’s sweeping legislative record spans nearly five decades and includes monumental shifts in social policy that improved the lives of millions. A liberal lion who roared [...]

  
I attended a very interesting conference last month in Sydney, which, although initiated by Australians, was aimed at developing collaboration among those involved in disability studies in the so-called ‘Global South’. That includes the countries in the Asia/Pacific including Australia and Aotearoa/New Zealand. Its purpose was to set a disability research agenda for our region [...]

  
Danish Thorkil Sonne has built up a successful company, Specialisterne, which employs people with autism in IT and product testing. He is coming to Sydney for the APAC09 conference in August but, unfortunately, contractual obligations prevent him from coming to New Zealand at this time. This article was published in the Independent.
http://www.independent.co.uk/life-style/gadgets-and-tech/features/better-faster-and-no-office-politics-the-company-with-the-autistic-specialists-1693057.html
Better, faster…and no office politics: the company with the [...]

Thursday 2 April was World Autism Day 
President Obama didn’t forget World Autism Awareness Day and his office sent out this message
 Hello,
Kareem Dale, Special Assistant to the President for Disability Policy,
advised me to send you the following attachments.
Thank you for all that you do,
Matt Tranchin
The White House
Office of Public Liaison

March 30, 2009

It is with profound commitment [...]

Consumer Forums 
The Ministry of Health’s Disability Services is holding a series of forums around the country in March / April seeking feedback from people using  DS funded services. Please go along if you can or make a postal, on-line or phone submission We need to complain loudly about Needs Assessment Service Coordination not accepting referrals [...]

I was angered that a significant change to the Education Act was passed by Parliament through all its stages under urgency before Christmas. It increased fines for parents of students who were not attending school, and it made way for publicly notified standardised testing of primary school students (as in the No Child Left Behind policy of the United States). [...]

Sarah is a New Zealand trained clinician working in Australia. As someone skilled in recognising autism spectrum conditions, she often faces a  dilemma about disclosure of possible AS to her patients. She wrote this for humans. She also has a website www.aspiesontv.blogspot.com
As a clinician working with a range of general patients, but with a research and clinical interest in [...]

People may be wondering what has been happening with the implementation of the NZ ASD Guideline since a consortium led by the New Zealand Guidelines Group working in partnership with the Ministries of Health and Education began working on it earlier this year. An Implementation Advisory Group (IAG) was set up, has now met three times, and has started prioritising the [...]